Trip 6 to ACH - July 9th

Yes, I have been horrible at keeping this blog updated. I promise to post Trips 4 - Dec and 5-April soon. But for now, I wanted to share with you the GREAT news that we received from our latest trip to ACH.

Zoe traveled great again. She is so easy going when it comes to being stuck in a car for 9-10 hours. It just amazes me. We left on Thursday as usual, spent the night and was at the hospital the next morning at 9 for her surgery at 11:30 on Friday. The procedure was the same as usual they look at her airway and laser her face. Dr. B was very pleased with her progress. The propranolol has been wonderful for Zoe. Dr. B now considers Zoe's hemangioma to be in Stable condition, aka her hemangioma appears to be out of its growing phase and entering its involution phase. It should start fading and going away on its own now. With this determination, it is time to wean her from her medication. We started that process on Saturday after the surgery. Today, July 17th was her last day of propranolol. Yeah!!!!

Now we just monitor her breathing closely to make sure that there is no signs of the hemangioma trying to start the growing phase again. If she starts to show any problems, they will put her back on the propranolol again. Typically, the docs have starting the weaning phase at 12 months, but with Zoe they waited closer to 15 months. We go back to ACH in 3 months for an office visit ONLY... Yeah!! Yeah!! Yeah!! Hopefully, this will be the last of these surgeries for my Zoe. It is possible to need more surgeries in the future, but we will keep praying that this was her LAST.

Thanks to everyone for all their thoughts and prayers for Zoe and our family!! God is truely Awesome!!!

(I will post pictures soon.)